Wordless{ish} Wednesday

What can I say, Dude LOVES the potty.




... Just not his.

Totally skipped over his own potty to sit on "Mama's Potty"

Solidarity

February 29th is World Rare Disease Awareness Day.

This year's focus is Solidarity. Why Solidarity? Since patients are rare, expertise is scarce and people living with rare diseases face similar challenges, so acting together makes sense. http://www.rarediseaseday.org/

There are 3 very special children I would like to support on this day.

The first, most obvious, is Liam.

Diagnosed at 8 months old with Hepatoblastoma. Hepatoblastoma is a solid tumor is the liver. There are only about 50 cases in the U.S. each year, with a 5 year survival rate of 60-70%. This accounts for 1% of all pediatric cancers.

My next solider is Liam's buddy Nolan.

Nolan has Neuroblastoma, while this is most common cancer in infants, I honor Nolan today- all pediatric cancer is considered rare. Neuroblastoma is a tumor that develops in the nerve tissues. Neuroblastoma can spread to multiple areas of the body; bones, bone marrow, skin, liver, lymph nodes. Nolan had several rounds of chemo and surgery like Liam, he however still has a tumor. Thankfully this scans have been clean for the past year- the tumor is not active.

Another Hero of mine- Kaitlyn.

The epitome of rare. Kaitlyn is 1 of 5 children in the U.S. with Niemann Pick Disease Type A. With a life expectancy of 2-4 years, this strong family cherishes every day they have with Kaitlyn, who is now 2 1/2 years old. With no cure or treatment, this little girl and her family are in our daily prayers.

Solidarity. Together we can do more.

Parenting Fail?

Is it a parenting fail if I see Liam doing something potentially dangerous and I run and grab my phone to take a picture before stopping him?

Does it make it worse if he smiles and says "CHEESE" instead of realizing what he did was wrong?

Oh well. At least he didn't find a gun in the laundry :)

Our Weekend

Well this comes without pictures, because I have just been so bad at pictures lately.

The stress was high this weekend, but we ended up having a good time.
Liam had a scan Saturday morning. These always make me nervous. I'm pretty sure they always will no matter how many good ones he has.

Saturday night Liam had his first sleepover! He stayed with his friends Hayden and Holden. I'm told it was a good time.
I was told when I picked him up this morning, last night when the boys were saying their prayers, they always say "God bless Liam" and it was fun that Liam was right there with them. IT makes me feel so good to hear Liam is still in people's prayers. I guess that is why I am still here sharing his story. I always felt it was because he was in so many people's thoughts and prayers that helped him get better. We are so grateful to all those who continue to pray for Liam and help to keep him healthy!

So how did Mom and Dad spend their night out? Dinner for my birthday and CARTY GRAS!
Our friends had a party last night. I WISH I had pictures, but Brian is probably thankful I don't (Enough Said).

Hope everyone else had a great weekend too!

Speak

"I'm Sixty and I know it"

We had a great time at our friend's Superbowl party last night. Taught Liam to throw his hand in the air when there was a touchdown. I think he enjoyed his first Superbowl.

Who wants to talk SuperBowl Commercials? Oh yes! The best part of the game... especially when you don't give a rip about either team.


my personal favorite