It was nearly a year ago that we met Kaitlyn, a friend in Liam's play group. Kaitlyn is seriously the sweetest little girl. Her smile is infectious. It is honestly a privilege to have Kaitlyn in our lives. But Liam has missed his friend lately, because just like when Liam was sick- it is too dangerous for Kaityn to be around her friends.Kaitlyn has Niemann Pick Disease type A, a rare, fatal genetic disease.
Kaitlyn's Video
Please consider participating in the 11-11-11 challenge by donating $11 to the challenge. The challenge is for each person who donates to find 11 more to donate $11.
Also by putting Kaitlyn Bourgeault in the in honor of section of your donation will dedicate your donation to NP type A research, which Kaitlyn is one of only 5 children living with in the US.
Please visit http://www.nnpdf.org/11-11-11Challenge.htm
Thank you so much for sharing this on your blog. It means so much to us! Love, The Bourgeault Family
ReplyDeleteI will be honored to participate in the 11-11-11 Challenge, Dawn. And thank you for posting. Bless the Bourgeaults for their effort to assure others parents do not have to experience what they are going through. I have never heard of this disease and I'm sure many others haven't either.
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